The GFPD, or Global Foundation for Peroxisomal Disorders, is dedicated to families impacted by Peroxisomal Biogensis Disorder-Zellweger Spectrum Disorder (PBD-ZSD).
PBD-ZSD affects every child differently. Some are severely impacted, some (like my son Gideon) are somewhere in the middle, and others are impacted rather mildly. GFPD is composed of families all along the spectrum and experience of this disease.
GFPD has an active online support network that connects more than 200 families in over 20 countries who understand this diagnosis. These fellow parents have become a second family to us and a true blessing when we have questions and/or just need to share the frustrations and/or joys that come along with these amazing children. If you or someone you know has a child affected by PBD-ZSD, please follow the link below to connect with other PBD families.