Tag Archives: Peroxisomal Biogenesis Disorder

Happy 7th Birthday Gideon

Faith & Hope, , , , ,
These photos were taken almost exactly 7 years apart. It’s almost like he’s got a secret that he’s holding onto. Maybe he’s been laughing all along because he knows something we don’t.

Happy 7th birthday Gideon!!

You were 7 months old when the doctors told us you had less than a year to live. Then once you made it to a year, they gave you a 77% chance of living until to school age.

Somewhere along the way we realized that you will write your own story and we will love you and celebrate you every day until Jesus calls you home.

So happy 7th birthday Gideon. You’ve done more to impact others in your first 7 years of life than I could ever hope to do if given 77. ♥️

Looking forward to celebrating you today and then again in a few more days at Great Wolf Lodge!

Omaha Bound

Special needs children, , , ,

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The Jolicoeurs are on the road again!! This time we are Omaha bound! What’s in Nebraska, you ask? The 2015 PBD Family & Scientific Conference!!

We are SO excited to meet other families like ours as well as doctors & specialists who are dedicated to researching and caring for our PBD kiddos.

We are coming from Dallas, so its going to be a long trip. We are 5 hours in and have already made 3 stops…one rest stop, a Braums with NO changing table (grrrrr), and of course, Cracker Barrel.

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Thankfully we have family in Wichita, KS so we will stay with them tonight and finish the last half tomorrow.

Shout out to the Robinson’s for letting us borrow their 4 Runner. (My vehicle is too small for all our bags plus G’s chair; and the A/C is broken in Kevin’s Vue.  Womp womp.)

We are SO excited for this conference!! Stay tuned for pictures of Gideon with all his new friends!!!!

In the meantime, we are Omaha bound!!

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On a side note, I spoke with a manager at Braums. She told me they have been asking corporate to install changing stations. She gave me the number below & I spoke to their customer service.

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They told me they were in the process of installing them into all their locations nationwide, but she couldn’t give me a set date as to when it would be complete. If you don’t mind, please take time to call them yourself. If enough of us call, maybe they’ll make this a priority!! Nothing worse than having nowhere to change your child.