It’s 10:30 pm and I just wanted to post a quick Gideon update.

This afternoon Kevin had an idea. He asked the nurse if they could move Gideon’s IV from his hand to his foot. Although we hated for him to get another stick, it’s proved (so far) to be totally worth it!! Gideon doesn’t seem near as agitated this evening. He tolerated sitting in his chair much better. Plus now he can use both hands to stick his vibrating tooth brush in both ears. I know it sounds silly, but that’s a big deal for our boy. Not to mention, he can play with his toys better! Especially the vibrating ball that bounces vigorously. It’s definitely a two-hander.

Also, he finished up a 4 oz packet of food and he took 3 oz of pediasure! That puts his total fluid intake (by mouth) at 12 oz for today; which not enough to remove the IV, but we are closer now than we were this morning.

I’m so glad they moved the IV. Not only does Gideon like to switch hands when taking his bottle, but he puts both fists in his eyes when he lays on his tummy.

Thanks for your cotinued prayers. I believe with all my heart they do make a difference!! Now we are praying that he sleeps well tonight…all night. 😉

I’ll do another Gideon update tomorrow.

Stay tuned..

Do you ever feel like you jinx yourself?

On Monday, I posted to my Facebook page that Gideon was sick.

In that post, I mentioned that he had only been admitted to the hospital once in all his 5 years of life. That’s a miracle for a kid with PBD!!

*Jinx*

And here we are- Gideon’s second hospital admittance.

We brought Gideon to the ER Tuesday afternoon because he was still lethargic and refusing to eat or drink. (Gideon does not have a G-Tube.)  The ER doctors told us his sugar level was extremely low; so they hooked him up to an IV, did blood work and a chest x-ray. The metabolic doctor and endocrinologist also had labs done and thankfully, everything came back great. The only thing they said was that he was probably fighting some kind of viral respiratory infection or bronchiolitis.

Unfortunately, because he was still refusing to eat or drink, they decided to admit him later that evening. Mimi and Papa brought our overnight things, as well as little brother and big sister! They were excited to see Gideon. <3

The night was rough. Kevin and I took turns sleeping and holding Gideon because he did not want to be put down.

So we met with the doctors this morning and they are going to keep him at least one more day. He has to drink at least 32 oz of liquids, in 24 hours, before they will remove the IV. That being said, we could be here longer than just one more day. His cough is pretty yucky and he has zero desire to eat or drink right now.

I’ll keep some updates going via FB, IG, and Twitter.  We appreciate your prayers for a quick recovery. Gideon’s second hospital admittance has been exhausting but the staff here at Children’s Dallas have been AMAZING! We are thankful for such compassionate care.

Also, I will no longer be boasting about how few times Gideon has been admitted to the hospital. 😉