Category Archives: Special needs children

Omaha Bound

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The Jolicoeurs are on the road again!! This time we are Omaha bound! What’s in Nebraska, you ask? The 2015 PBD Family & Scientific Conference!!

We are SO excited to meet other families like ours as well as doctors & specialists who are dedicated to researching and caring for our PBD kiddos.

We are coming from Dallas, so its going to be a long trip. We are 5 hours in and have already made 3 stops…one rest stop, a Braums with NO changing table (grrrrr), and of course, Cracker Barrel.

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Thankfully we have family in Wichita, KS so we will stay with them tonight and finish the last half tomorrow.

Shout out to the Robinson’s for letting us borrow their 4 Runner. (My vehicle is too small for all our bags plus G’s chair; and the A/C is broken in Kevin’s Vue.  Womp womp.)

We are SO excited for this conference!! Stay tuned for pictures of Gideon with all his new friends!!!!

In the meantime, we are Omaha bound!!

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On a side note, I spoke with a manager at Braums. She told me they have been asking corporate to install changing stations. She gave me the number below & I spoke to their customer service.

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They told me they were in the process of installing them into all their locations nationwide, but she couldn’t give me a set date as to when it would be complete. If you don’t mind, please take time to call them yourself. If enough of us call, maybe they’ll make this a priority!! Nothing worse than having nowhere to change your child.

 

Family Retreat Day 4

Today was not the last day of camp, but it was for us. As I think back over the events of today, I can’t help but cry all over again.

Family Retreat day 4 was bittersweet. We always start the day with inclusive worship. Nothing is more beautiful than to see God’s children, able and disabled, praising the Lord. Some with hands raised and other full-out dancing in the aisles. It’s freeing and pure…and I never wanted it to end.

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The message today had me in tears. I’m planning a separate blog about it, because it’s too much right now for all that I want to share with you.

Kevin and I went skeet shooting this morning with some great people. I opted out of shooting myself because I didn’t want to nurse a bruised shoulder for the rest of the day. Lame excuse, I know. I’m expecting to catch flack from the Allens.

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The rest of the day we just hung out. We went to watch Gideon swim with his STM. Check out my FB page later for that video. It is precious to watch.

The kids came back to us with frames they made containing some sweet photos. For our 3 pm – 5 pm family time, the kids got to paint real miniature horses! We didn’t do Gideon’s hand in paint but he did enjoy petting them eventually. (The paint was non toxic and washable in case you were worried for the horses..)

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Afterwards we went back to the lake so Laynie could show off on the blob and slide. I still can’t believe she swam in the lake. My mom is going to freak out.

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And finally the night ended with the long-awaited talent show.

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This is where the kleenex would have really come in handy. My sleeves are still crusty with snot even as I type this. Imagine children with all forms of disability singing, dancing, doing magic tricks. And even their siblings were welcomed to perform. Some did solos, some did duets…even moms and dads performed with their kids.

Laynie sang the books of the Bible to represent for the Jolicoeur family. We were so proud.

Nothing was turned down & nothing was off limits. When someone messed up and forgot the words or moves, the audience encouraged with cheers and clapping. And everyone got a standing ovation…from the first act to the 40th.

Joy and praise. It’s how the day began and it is how the day ended. We were sad to leave but as we drove back tonight we decided that this will be our annual vacation.  True respite for us. Total fun for our kids.

Thank You Joni and Friends for making this a memorable and restful experience.

Family Retreat Day 3

Well, I’m all in. I’ve chugged the JAF kool-aid and I will never be the same. I cannot even begin to describe this place. It’s truly life changing.

Family Retreat day 3 rocked. Just when I thought it couldn’t get any better, it did.

The activities just keep getting better, for us AND the kids. Today Kevin & I rode horses. I haven’t been on a horse since 5th grade camp at Sky Ranch. I made the mistake of wearing shorts but thankfully it was overcast with a breeze.. so the chaffing was minimal. Kevin was less than thrilled about this one, but nevertheless he came along for the ride.

I forgot to get his photo (plus my phone was in his pocket). But if you can imagine duck dynasty, in cargo shorts, riding a horse named sugar, you’ll get a good metal picture of what he looked like. The trail had the most beautiful views.

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Laynie’s group did a tote bag craft & went to the lake after Bible time. She did the blob AND the big slide. I will have access to their group photos after camp wraps up. Gideon’s group colored t-shirts and after their Bible time, they got to pet different animals!! His STM provided me some photos..

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When we came back together for family time at 3 pm, we took this kids to ride horses. Both kids loved it and they rode multiple times.

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Later that evening (after we all showered) the parents attended a split dinner with Joni & Ken.

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A split dinner means the adults enjoy a fancy 3 course meal by candle light…and the kids eat pizza somewhere else. Upon completion of our meal they pulled back the curtains to reveal the beautiful view of our children having a shaving cream fight. Even the kids in the wheelchairs were covered with white foam. They had more fun…and it was a blessing to behold. (We thought it best that Gideon sit this one out.)

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Afterwards, Kevin put the kids to bed while I attended spa night for the moms. I got a neck rub and a foot message by the sweetest ladies. They were even painting nails & toes! (Thanks Stacy for my nail art!!)

Later I ended up in a recliner sharing a heart-to-heart with my sweet new friend Camilla- a fellow mom who knows all to well the struggles of disability. Turns out they live in Garland. So many families here are from the DFW area.

We feel so blessed that God placed us at this camp, this week. It’s been so amazing.