Category Archives: Special needs children

Memorial Day Weekend 2018

This three day weekend has been amazing for our family. I’m so excited to say that Gideon is doing really well!! First of all, he slept through the night both Saturday and Sunday night. Also, Gideon has had his full calorie intake by mouth for the past two days. And if you look at these photos and video from our Memorial Day Weekend, you’ll see that his smile and laugh are back as well.

Thank you all for your prayers and your continued prayers. Gideon still needs to gain more strength and put on some weight, but over all it appears as though we may be over the hump. Praise the Lord!!

Here are some sweet family moments. Enjoy.

There are never enough batteries

Since Gideon went into the hospital he has up’d his usage time with his vibrating toothbrushes. Which means these days there are never enough batteries.

In fact, every single one of these toothbrushes are dead and we have four batteries left. What can I say? The kid likes what he likes.

I wish I had great news to report about Gideon. The truth is that he is doing good enough to get by for now. We’ve been home a week and he has slept through the night once. His eating and drinking is good enough one day, and not as good the next.

We are emotionally and physically drained. It’s hard for me to post updates because I feel like we take one step forward and two steps back. My husband got up with Gideon (again) this morning at 12:45 am, and this is where I found him at 7 am. Gideon had one hand on his daddy’s beard and the other was clutching a dying toothbrush. It was on all night.

Hence the reason there are never enough batteries.

 

(The reason we don’t use rechargeable batteries is because Gideon has been known to lose his toothbrushes when we are out and about.)

We are home again

We are home again.

I am so glad we are home again.

Gideon was discharged from the hospital Wednesday at 2 pm. To say we were ready is an understatement. He is eating and drinking “enough” but we will be following up with a gastrointestinal doctor in the coming weeks. A g-tube is in our future, but he needs to be well for 6 weeks. They are concerned he will not make it through a surgery with this current virus.

Gideon is still very sick, but in a much better place than he was last weekend. I think being home has made a huge difference. The photo at the top of this page was his first official smile since he got sick two Sundays ago.

We appreciate your continued prayers. We are so thankful for all the love and meals that we have already received from our family, community group and church family.

Tonight someone anonymously dropped off some AMAZING cookies on our doorstep. I’m going to need that person to anonymously drop off the recipe as well.  They were SO good!

I have so many people that I want to thank and recognize for loving us well during this time, but I’m exhausted and in need of much sleep. So I will save that post for another time. Until then, please know that we are so thankful.

Good night and God bless you all!!