Gideon Update!

We have had lots of doctor appointments recently and we still have quite a few more going into December; so I wanted to let you guys know about some of the results that we have recently received.

Last month, Gideon was in the hospital for a virus. The urine test and nasal swab came back normal. But their biggest concern was that his platelet count was low, 85K. (Normal is in the 130’s.) The hematologist then asked us to come back in a few weeks for a follow-up blood test, to see if his count had improved once the virus was gone.

That appointment happened yesterday and Praise Jesus! his counts are in the normal range!! His hemoglobin levels were still slightly down (11.5 is normal and Gideon is at 11.2), but the doctor thinks this is normal for Gideon given his diagnosis. My only complaint was that they had to stick him twice to get enough blood. And when they pricked his foot, it left a slash (it’s like he moved when she stuck him). Needless to say, his finger and foot were bruised to a deep purple color and I’m so glad we don’t ever have to go back! Little G was discharged from their office with a clean bill of health!!!

Well, clean for him.  😉

We also had a follow-up ABR (hearing test) on Halloween. The results showed his hearing is stable; meaning Gideon has not lost anymore hearing since his last test!! This is also very good news!! We have a follow-up with his audiologist later this month to pick up his new ear-molds.

Next week is crazy. Gideon is going back to Scottish Rite Hospital to see about his feet and what his future looks like in the way of standing/bearing weight. Also next week, we are going to see a wellness doctor close to home who is interested in learning more about Gideon and his genetic disorder…not sure right now what that will look like, but we are excited that doctors are interested in knowing more about our little guy.

And finally, in December we will see his ophthalmologist and endocrinologist. I’m anxious to see the endocrinologist as many of our PBD kids suffer with adrenal insufficiency. I’ll  keep you posted as those appointments take place.

We feel extremely blessed with all this good news and we appreciate your prayers as we continue to navigate this crazy life with our Mighty Warrior.